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Finding Strength in Struggles: A Mother-Daughter Story #beatingcowdens
They never go away. Your experiences, that is. Our lives are literally made of them. And in all of our lives, some are happy, some are sad, others are joyful, or sometimes traumatic. We can’t change...
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“It Doesn’t Suck”
“Thank you…” That’s how she led at 6:30 on a Saturday morning, when I picked her up 140 miles from home so she could squeeze in a uterine biopsy on the weekend, so as not to miss any class her first...
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Red Flags and Butterflies
It’s really a dizzying vacillation between the two. So much time is spent at the red flag, laser focused, all hands on deck stage, that when there is a pause to give some time to breathe, and maybe...
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Narcan?!?!?!
We got home from the hospital late Friday of last week. After 5 days and 4 nights-her longest hospital stay since she was a toddler, we trekked from Long Island to Staten Island, a 35-mile journey...
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What will your verse be?
“…That the powerful play goes on and you might contribute a verse.” -Walt Whitman (O Me! O Life!) “What will your verse be?”- Robin Williams (Dead Poet’s Society) I couldn’t sleep last night. This...
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Pandemic Got Your Tongue?
NYC #COVID19 NYC #Covid19 There are things you could do without ever experiencing. Clearly #COVID19 is one of them. I live in NYC. I have lived here every one of my 46 years. I was born and raised...
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Six Wheels and a Boot
At any given point during our 10 days in Disney, our party of three also had six wheels and a boot. We must have looked unusual to anyone who passed us by. I traveled with a virtual pharmacy in my...
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Rare -ER? More Rare? Where to Begin?
A new diagnosis came our way this week. On top of the existing one. I have wavered between frustration and relief. I have felt some questions answered and developed a lot of new ones. My girl got...
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It’s This Day to Day Living…
And that might be an accurate description of my current assessment of living with Cowden’s Syndrome. It’s so hard to put into words. Those who don’t understand are likely to think I’m insane. When...
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(Living) “In Prep for the Climb”– PTEN Awareness Day 10/23/18
I’m aware of Breast Cancer. As a survivor now of 6 years and the daughter of a 21 year survivor, I am aware as I dry from my shower facing my mastectomy scars every morning, that breast cancer is...
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Tragedy Surrounded by Love
My cousin Kim stood, graveside, holding 2 flowers over the 7 month baby bump under her black dress. Two roses. One was red and the other was pink. One was for her, and the other for baby Mackenzie....
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Dear Meghan… Mother’s Day 2018
Dear Meghan, Almost 15 years ago you entered this world kicking and screaming. You scared the heart out of us, the doctors, and the nurses. The NICU nurses called you “Miss Attitude”. Even in...
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Dear Mom…. Mother’s Day 2018
Dear Mom, You’re small but mighty. You’re a force to be reckoned with. You are a role model, and an inspiration. You are a survivor. You never give up. You were my very first hero. I’ve learned a...
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Triage- A Way of Life
Triage. The word hangs with me like the memories of countless Emergency Room visits. Triage. Take care of the most serious first. It’s the reason we might wait hours for stitches, and barely a moment...
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Ice Cream for Dinner
You have to give the body what it needs. Tonight mine needs ice cream. With hot fudge. Normally I’m a protein shake, green tea kind of gal. But I don’t really believe in drawing hard lines...
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Grandma – The Long Goodbye
Real life continues around you whether you want it to or not. And over the last few years as we have juggled Cowden’s Syndrome, my dear Grandma has battled Alzheimer’s Disease. This disease is far...
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Sometimes GOOD Things Do Happen…
Sometimes really GOOD things happen. And when they do it is just such a jubilant feeling of gratitude and relief. In October I wrote at length about Meghan’s struggle with PTSD and anxiety. I wrote...
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More questions than answers…
I haven’t written regularly and it is wearing on me. I keep putting things in front, waiting to be ready, to be finished so I can focus. Except life is really busy. And it keeps getting busier....
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delete
Don’t you sometimes just want to hit the delete button? We were going through vacation photos and I was struck by how easy it was to eliminate images that we found unflattering. We were able to simply...
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To My Girl On Her Birthday
Sometimes you’re on top of the world. Stay HUMBLE. Sometimes you’ve hit a low. Stay HOPEFUL. The Lokai bracelet nailed it with real world advice. Meghan as you turn 14, there is little more I need...
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